Toolkit Resources


The following list includes acronyms that are frequently used throughout the toolkit.

Abbreviations in ePROs Toolkit
AHRQ Agency for Healthcare Research and Quality

AHIMA American Health Information Management Association

AMIA American Medical Informatics Association

API Application Programming Interface Application programming interfaces (APIs) enable information systems to communicate and transfer data among each other.
EHR Electronic Health Record

An electronic health record (EHR) is an electronic version of a patient’s paper chart.

ePRO Electronic Patient-Reported Outcome Patient-reported outcome measures that are collected electronically.
FHIR Fast Healthcare Interoperability Resources A standard for exchanging healthcare information electronically, published by HL7.
HL7 Health Level Seven International
HRQoL Health-Related Quality of Life Health-related quality of life (HRQoL) is an individual’s or a group’s perceived physical and mental health over time.
ISOQOL International Society for Quality of Life Research
MCID Minimal Clinically Important Difference Minimal clinically important differences (MCID) are patient-derived scores that reflect changes in a clinical intervention that are meaningful for the patient.
ONC Office of the National Coordinator
PGHD Patient-Generated Health Data Patient-generated health data (PGHD) is health- related data created, recorded, or gathered by or from patients (or family members or other caregivers) to help address a health concern.
PHQ-9 Patient Health Questionnaire - 9 The PHQ-9 is a nine item questionnaire to assess the presence and severity of depressive symptoms.
PROMIS Patient-Reported Outcomes Measurement Information System Patient-Reported Outcomes Measurement Information System is a set of person-centered PROMs that ePRO measurement across a range of important health domains including physical, mental, and social health. See to learn more.
PROMs Patient-Reported Outcome Measures Patient-reported outcome measures (PROMs) are questionnaires that allow patients to directly report their experience with disease symptoms or well-being, without modification by a healthcare team member. PROMs can provide clinically meaningful and patient-centered insight into screening, diagnosis, and response to treatment.
SADT Structured Analysis and Design Technique Structured Analysis and Design Technique (SADT) is an approach to workflow modeling based in systems engineering that describes systems as a hierarchy of functions.
SMART Substitutable Medical Application and Reusable Technology A standard for data access security.
UCD User-Centered Design User-centered design (UCD) is a method for technology design that focuses on the user experience throughout the design process.