Project Background


This toolkit represents a team effort, in which many individuals beyond the core author group made contributions to the content. We gratefully acknowledge their assistance. We offer our heartfelt thanks to the many stakeholders at UW Medicine (clinicians, staff, and researchers) and the faculty and software engineers at the UW Clinical Informatics Research Group for their practical experience, input, and valuable feedback on various sections of the toolkit. We would like to thank all participants who shared their experiences via interviews, focus groups, and observations, and the work of Mary Beth Hasselquist in visualization development and Caroline Shevrin for her technical editing.

The meaningful contributions of a diverse group of individuals who informed, participated, collaborated, and co-presented at the various workshops (sponsored by American Medical Informatics Association [AMIA], Society for Medical Decision Making [SMDM], AcademyHealth, Healthcare Information and Management Systems Society [HIMSS]), and International Society for Quality of Life Research [ISOQOL]) have been essential to the development of this toolkit. We also thank our co-presenters of the AMIA workshops, namely Arlene Chung (University of North Carolina at Chapel Hill), Carolyn Petersen (Mayo Clinic), and Sabrina Hsueh (Viome, Inc).

This toolkit is in the public domain and may be used and reprinted without permission. We request that you cite this work appropriately using the suggested citation provided below. Versions of this content have been presented in various formats at conferences and in manuscripts.

Suggested citation

LeRouge C, Austin E, Lee J, Segal C, Sangameswaran S, Hartzler A, Lober B, Heim J, Lavallee DC. ePROs in Clinical Care: Guidelines and Tools for Health Systems. Seattle, WA: CERTAIN, University of Washington. May 2020.

CERTAINUniversity of WashingtonFlorida International University

Date: 5/31/2020
Version: 1.0
Address: CERTAIN, Seattle, WA 98105
Web address:

Production assistance provided by the Northwest Center for Public Health Practice,

Production Team

Rick Bruch, Web Computing Specialist
Kevin deVoss, MA, Instructional Designer
Seonah Jeon, MA, Graphic Designer
Wes O’Seadna, Graphic Designer

This project was supported by grant number R01HS023785 (PI Lavallee) from the Agency for Healthcare Research and Quality, division of Digital Healthcare Research. The content is solely the responsibility of the authors and does not necessarily represent the official views of the Agency for Healthcare Research and Quality.

None of the authors have any affiliations or financial involvement that conflicts with the material presented in this toolkit.