Toolkit Resources
Abbreviations
The following list includes acronyms that are frequently used throughout the toolkit.
| Abbreviations in ePROs Toolkit | ||
|---|---|---|
| AHRQ | Agency for Healthcare Research and Quality | |
| AHIMA | American Health Information Management Association | |
| AMIA | American Medical Informatics Association | |
| API | Application Programming Interface | Application programming interfaces (APIs) enable information systems to communicate and transfer data among each other. |
| EHR | Electronic Health Record |
An electronic health record (EHR) is an electronic version of a patient’s paper chart. |
| ePRO | Electronic Patient-Reported Outcome | Patient-reported outcome measures that are collected electronically. |
| FHIR | Fast Healthcare Interoperability Resources | A standard for exchanging healthcare information electronically, published by HL7. |
| HL7 | Health Level Seven International | www.hl7.org |
| HRQoL | Health-Related Quality of Life | Health-related quality of life (HRQoL) is an individual’s or a group’s perceived physical and mental health over time. |
| ISOQOL | International Society for Quality of Life Research | www.isoqol.org |
| MCID | Minimal Clinically Important Difference | Minimal clinically important differences (MCID) are patient-derived scores that reflect changes in a clinical intervention that are meaningful for the patient. |
| ONC | Office of the National Coordinator | www.healthit.gov |
| PGHD | Patient-Generated Health Data | Patient-generated health data (PGHD) is health- related data created, recorded, or gathered by or from patients (or family members or other caregivers) to help address a health concern. |
| PHQ-9 | Patient Health Questionnaire - 9 | The PHQ-9 is a nine item questionnaire to assess the presence and severity of depressive symptoms. |
| PROMIS | Patient-Reported Outcomes Measurement Information System | Patient-Reported Outcomes Measurement Information System is a set of person-centered PROMs that ePRO measurement across a range of important health domains including physical, mental, and social health. See HealthMeasures.net/PROMIS to learn more. |
| PROMs | Patient-Reported Outcome Measures | Patient-reported outcome measures (PROMs) are questionnaires that allow patients to directly report their experience with disease symptoms or well-being, without modification by a healthcare team member. PROMs can provide clinically meaningful and patient-centered insight into screening, diagnosis, and response to treatment. |
| SADT | Structured Analysis and Design Technique | Structured Analysis and Design Technique (SADT) is an approach to workflow modeling based in systems engineering that describes systems as a hierarchy of functions. |
| SMART | Substitutable Medical Application and Reusable Technology | A standard for data access security. |
| UCD | User-Centered Design | User-centered design (UCD) is a method for technology design that focuses on the user experience throughout the design process. |